About the Event
Join us to celebrate the achievements of the Health Studies Australia National Data Asset (HeSANDA) node projects and launch Health Data Australia for the Australian health research community.
Health Data Australia makes sharing and requesting access to data from health studies easier.
The framework for sharing clinical trial data was co-designed by the ARDC and experts and representatives for the initial 9 nodes of the HeSANDA Network, which cover 72 health research organisations, health service operators and clinical trial networks from across Australia. More than 90 people took part in working groups, incorporating feedback from research trial participants, consumers, researchers and trial organisers.
Health Data Australia allows clinical trialists and data custodians to share clinical trial data according to standards designed by the Australian clinical trials community and fulfil data-sharing requirements that come with public funding. The platform can subsequently be used by researchers who were not involved in the clinical trials to find and request access to this data.
The ARDC’s People Research Data Commons is taking HeSANDA forward as an enduring infrastructure for Australian researchers.
- Professor Steve Wesselingh, incoming CEO of NHMRC, Executive Director and Infection and Immunity Theme Leader at SAHMRI, Chair of the NHMRC Research Committee, Director of the NHMRC Council, and President-elect of the Australian Academy of Health and Medical Sciences Limited (AAHMS)
- Ms Wendy Keech, Executive Director, Health Translation SA
- Dr Adrian Burton, Deputy CEO and Director, People Research Data Commons, ARDC
- Dr Kristan Kang, Program Manager, HeSANDA, ARDC
- Ms Delaine Smith, CEO Australasian Leukaemia and Lymphoma Group
- Professor Julian Elliott, Cochrane Australia / Australian Living Evidence Consortium
The launch will be held at the South Australian Health and Medical Research Institute (SAHMRI) in Adelaide/Kaurna Country and broadcast live via Zoom. Lunch will be available from 12 noon.
Who Should Attend
- The health research community
- All those involved in the HeSANDA program and consultations, including researchers, librarians, ICT, clinical trial community, Steering/Advisory Committee, Board Members
What You Will Gain
As an attendee, you will learn:
- the achievements of the HeSANDA node projects
- how the Health Data Australia platform works
- who was involved in developing the platform
- what the future directions of the HeSANDA program are.
The session will be recorded. The recording will be provided to all registrants and published online.
Do you have questions about this event? Email [email protected].
Related News & Events
- Clinical Trial Data Unlocked for Research with New National Platform
- Health Data Australia Set to Accelerate Research Through Data Sharing
- Design Phase Complete for National Health Studies Data Infrastructure
- 9 Nodes Announced for the National Health Studies Data Infrastructure
- Experts Discuss Sharing Sensitive and Identifiable Human Data