The LINked Data Asset for Australian Health Research (LINDAHR) will enable robust multi-jurisdictional research assessing the safety, quality, equity and value of health care and policies as well as studies of rare diseases and priority populations.

A partnership between the Australian Institute of Health and Welfare (AIHW), government departments, a consortium of research organisations and the ARDC will establish a new research version of existing national linked data assets held by AIHW.

The asset will be designed to enable the progressive linkage and integration of high-value investigator-initiated health datasets, including registries, cohort studies and clinical trials from source datasets. The data asset framework, governance and infrastructure will enable the inclusion of longitudinal person-based records for hospitalisations, emergency department and aged care services, Medicare services, subsidised medicines, disability, notifiable conditions, cancers, cancer screening, deaths, and social determinants of health.

1 Establish linked health data asset
Establish a national linked health data asset and make it accessible through a secure remote analysis environment.
2 Develop processing pipeline
Build data processing & curation pipelines to maximise the asset’s usability.
3 Streamline governance
Develop best-practice, streamlined governance arrangements for access & use by trusted researchers.
4 Develop operational & licence arrangements
Develop operational & licence arrangements to support long-term sustainability of the asset.
5 Develop interface
Establish an interface to a code-sharing platform to ensure the reproducibility of research outputs.

Core features

Processing and curation
Pipelines for data processing and curation will maximise the asset’s usability.
Governance and licensing
Best practice, streamlined governance and licensing arrangements will enable access and use by trusted researchers.
Reproducibility
An interface to a code-sharing platform will be established to ensure the reproducibility of research outputs.

Who is this project for?

  • Research organisations
  • Government agencies
  • Health service providers

What does this project enable?

This project will enable robust multi-jurisdictional research assessing the safety, quality, equity and value of health care and policies as well as studies of rare diseases and priority populations. It will enable timely and cost-effective research that will reduce harm and improve our surveillance and crisis responses including to pandemics.

Handy resources

UNSWVisit
Australian Institute of Health and WelfareVisit
Australian Government Department of HealthVisit
Queensland HealthVisit
NSW HealthVisit
Population Health Research Network (PHRN)Visit
University of Technology SydneyVisit
University of SydneyVisit
University of MelbourneVisit
Monash UniversityVisit
Bond UniversityVisit
University of QueenslandVisit
University of Western AustraliaVisit
Curtin UniversityVisit
ANUVisit
University of TasmaniaVisit
University of South AustraliaVisit
The George Institute for Global HealthVisit
Hunter Medical Research InstituteVisit
Baker Heart and Diabetes InstituteVisit
Burnet InstituteVisit
Peter MacCallum Cancer CentreVisit
QIMR BerghoferVisit
Telethon Kids InstituteVisit