Improving patient outcomes for heart disease

Percutaneous Coronary Intervention (PCI) Outcomes Registry – Baseline Data

Cardiovascular disease (CVD) is the leading cause of death and morbidity in Australia. CVD was the primary diagnosis in 11% of hospitalisations in Australia in 2015-16, with the largest proportion of those being for Coronary Heart Disease (CHD).

The free-text, paper-based and siloed nature of health data in Australia prevents the large-scale collection of high-quality baseline patient and clinical outcomes data for cardiovascular research and large-scale quality assurance and monitoring programs. This project will leverage the established and proven data collection processes at Eastern Heart Clinic to build a robust, multicentre, prospective percutaneous coronary intervention (PCI) outcomes registry.

Start date 3 June 2019

Expected completion date 21 October 2019

Investment by ARDC $50,000

Co-investment partners

Eastern Heart Clinic

Centre for Big Data Research in Health (UNSW)

Sydney Partnership for Health, Education, Research & Enterprise (SPHERE) Cardiac and Vascular Health Clinical Academic Group (CAG)

Prince of Wales Hospital

Lead node

1 Establish a consensus on baseline and demographic PCI data collection

With the SPHERE Cardiac and Vascular Health Clinical Academic Group, establish by consensus a standard set of data elements to be collected in patients undergoing PCI.

2 Create a web-based data entry portal

Create a readily accessible and scalable web-based portal for data entry by each site to a secure central data repository with governance around privacy, security, access and use.

3 Establish a scalable data collection protocol

Through consultation with prospective sites, establish a scalable data collection protocol that enables integration of data collection processes into existing organisational processes.

4 Completion of project

Project outcomes will be presented at an ARDC Data and Services Summit in October 2019.

Core features

Quality of care

Improve the quality of care provided to patients living with coronary heart disease

Enable research

Enable research into the clinical outcomes for PCI in coronary heart disease patients

Help address the burden

Help to address the burden of coronary heart disease on our health system

Who is this project for?

Clinicians
Researchers
Peak bodies such as Sydney Partnership for Health, Education, Research & Enterprise (SPHERE) Cardiac and Vascular Health Clinical Academic Group (CAG)
Hospitals
State & Federal Health Departments

What does this project enable?

This project will enable the relevant clinical stakeholders to reach consensus on the clinical data collection elements and protocols necessary to establish a national PCI outcomes clinical registry that ultimately will facilitate evaluations of the quality of care delivered to coronary heart disease patients across Australia.