ARDC Leadership Series: Sharing Sensitive and Identifiable Human Data

Categorised: News

ARDC Leadership Series wireframe dartThe ARDC Leadership Series is a new event series providing decision makers in academia, government and industry with an opportunity to work through the big data challenges impacting Australia’s researchers.

Key topics for the series include managing human data, digital skills for Australian research, and the translation of research into commercial benefits for Australia.

Kicking off the series on 3 May 2022, key research stakeholders will address the challenges of sharing sensitive and identifiable human data.

Sharing sensitive data between industry and research sectors can be challenging. Trust, risk management, competitive advantage and intellectual property rights are all significant hurdles to navigate when sharing sensitive data. Sensitive data can’t be shared openly for legal and/or ethical reasons and is often subject to specific conditions when reused due to the significant risk it poses to the research subjects (humans, endangered species, etc).

The ability to share sensitive data securely opens up enormous opportunities for research and industry. Industry can use data to drive innovation and translation at scale, while the research sector can gain significant new insights to understand human health and wellbeing.

Providing solutions for sharing sensitive data will reduce delays in time-limited projects, increase the return on investment of research, create positive impacts on project outputs, and benefit the Australian public as a whole.

Join us in a scenario-driven panel session where key influencers and decision makers will respond to these challenges by highlighting benefits, identifying blockers and enablers, and testing the appetite for a coordinated approach among Australian research organisations, using a specific exemplar case study.

If you are responsible for strategic direction, decision-making, and resource allocation within your research organisation, this series is designed for you and we would love to have your involvement and input.

The panellists are:

  • Prof Peter Soyer, MRFF-NG Practitioner Fellow, The University of Queensland Diamantina Institute Faculty of Medicine
  • Dr Phillip Gould, First Assistant Secretary, the Australian Government Department of Health
  • Ms Marion Hemphill, General Counsel, Australian Red Cross Lifeblood
  • Dr Merran Smith, Chief Executive, The Population Health Research Network (PHRN)
  • Prof Sotiris Vardoulakis, Centre for Public Health Data and Policy, The Australian National University (ANU).

The facilitator of the event is Prof Joe Shapter, Pro-Vice-Chancellor, Research Infrastructure, The University of Queensland.

The event will be held as a hybrid meeting with in-person participation in Sydney on 3 May 2022 at an ARDC partner institution (limited numbers). If you would like to attend, register now

The ARDC is funded through the National Collaborative Research Infrastructure Strategy (NCRIS) to support national digital research infrastructure for Australian researchers.

Written by Ian Duncan, ARDC. Reviewed by Jo Savill, ARDC.

Last updated: 1 April 2022

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