As part of its National Data Assets program, ARDC seeks to facilitate and catalyse the development of a Health Studies Australian National Data Asset (the HeSANDA program).

The long term goal of HeSANDA is to build the national infrastructure required to support the sharing and reuse of health research data in a way that would bring value to the research community, increase the impact of research, and provide benefits for the health of Australia’s population.

ARDC will take an incremental approach to HeSANDA. The initial focus is on sharing and reusing data from publicly-funded clinical trials research conducted in the academic sector. As the first step in this journey, ARDC seeks to establish consensus amongst clinical trials researchers interested or involved in data sharing about how they would use a national data asset to support and improve their research activities.

ARDC invites interested parties to participate in a series of consultation workshops to help establish the research uses, data requirements, and feasibility of a national data asset created from clinical trials research data. These topics will be addressed via a series of consultation workshops on the basis of four themes:

• Theme A - Research purpose
• Theme B - Data content & quality requirements
• Theme C - Existing data standards & practices
• Theme D - Governance, IT, & other considerations

The priority for the workshops shall be to address Themes A, B, and C in order to identify the research purpose, contents, and data standards of the data asset. The Theme D workshop shall provide the initial opportunity to discuss the range of other topics important for the successful implementation of a data asset (e.g. governance, ethics, etc), however, the topics identified in Theme D shall be explored in a separate consultation series (to be announced soon) to consider these issues and requirements in greater depth.

The outcomes of these consultations will be documented and used to inform the criteria for funding of infrastructure to support the national data asset.

How will it work?

A series of open workshops will be held every 3 weeks to address the themes as follows:

• 11 Aug - Research purpose
• 1 Sep - Data content & quality requirements
• 22 Sep - Existing data standards & practices
• 13 Oct - Governance, IT, & other requirements

Each theme will be supported by:

• Background documentation & structured feedback form
• A moderated workshop with Q&A and breakout sessions

Repeat workshops may be organised subject to demand. Interested parties who are unable to attend the workshops may be allowed to contribute to the consultations by providing feedback via the workshop forms.

Who is this for?

For this first consultation series, ARDC seeks the expertise and experience of clinical trials researchers in Australia who are involved in data sharing (as either a data producer and/or user) to establish their data requirements, needs, and specifications as outlined above.

Please note, this first consultation series will have a narrow focus on the research purpose and contents of the data asset. A separate consultation series will be announced soon that will focus on the implementation and operational requirements for data sharing (governance, ethics, security, etc) and will be aimed at health researchers, institutions, organisations, and policy makers involved in clinical trials research more broadly.

How do I find out more information?
Visit HeSANDA or contact ARDC

Register 

As part of its National Data Assets program, ARDC seeks to facilitate and catalyse the development of a Health Studies Australian National Data Asset (the HeSANDA program).

The long term goal of HeSANDA is to build the national infrastructure required to support the sharing and reuse of health research data in a way that would bring value to the research community, increase the impact of research, and provide benefits for the health of Australia’s population.

ARDC will take an incremental approach to HeSANDA. The initial focus is on sharing and reusing data from publicly-funded clinical trials research conducted in the academic sector. As the first step in this journey, ARDC seeks to establish consensus amongst clinical trials researchers interested or involved in data sharing about how they would use a national data asset to support and improve their research activities.

ARDC invites interested parties to participate in a series of consultation workshops to help establish the research uses, data requirements, and feasibility of a national data asset created from clinical trials research data. These topics will be addressed via a series of consultation workshops on the basis of four themes:

• Theme A - Research purpose
• Theme B - Data content & quality requirements
• Theme C - Existing data standards & practices
• Theme D - Governance, IT, & other considerations

The priority for the workshops shall be to address Themes A, B, and C in order to identify the research purpose, contents, and data standards of the data asset. The Theme D workshop shall provide the initial opportunity to discuss the range of other topics important for the successful implementation of a data asset (e.g. governance, ethics, etc), however, the topics identified in Theme D shall be explored in a separate consultation series (to be announced soon) to consider these issues and requirements in greater depth.

The outcomes of these consultations will be documented and used to inform the criteria for funding of infrastructure to support the national data asset.

How will it work?

A series of open workshops will be held every 3 weeks to address the themes as follows:

• 11 Aug - Research purpose
• 1 Sep - Data content & quality requirements
• 22 Sep - Existing data standards & practices
• 13 Oct - Governance, IT, & other requirements

Each theme will be supported by:

• Background documentation & structured feedback form
• A moderated workshop with Q&A and breakout sessions

Repeat workshops may be organised subject to demand. Interested parties who are unable to attend the workshops may be allowed to contribute to the consultations by providing feedback via the workshop forms.

Who is this for?

For this first consultation series, ARDC seeks the expertise and experience of clinical trials researchers in Australia who are involved in data sharing (as either a data producer and/or user) to establish their data requirements, needs, and specifications as outlined above.

Please note, this first consultation series will have a narrow focus on the research purpose and contents of the data asset. A separate consultation series will be announced soon that will focus on the implementation and operational requirements for data sharing (governance, ethics, security, etc) and will be aimed at health researchers, institutions, organisations, and policy makers involved in clinical trials research more broadly.

How do I find out more information?
Visit HeSANDA or contact ARDC

Register 

GovHack is an international competition for people of all abilities who seek to make life better through open data.  Across one weekend, thousands come together to form teams, agree projects, and participate in what has become one of the world’s largest open data competition.

This year's Australian and New Zealand's competition will be held virtually and will feature the following themes:

• Resilience and Recovery of our Communities
• Beyond COVID-19: New Ways to Work & Play
• Inclusive and Accessible
• Health & Wellbeing
• Open Science
• Citizen Science
• Emergency Management
• Australian Bushfires

The ARDC has become a National Agency Sponsor this year to support the GovHack event.

Participate

GovHack is an international competition for people of all abilities who seek to make life better through open data.  Across one weekend, thousands come together to form teams, agree projects, and participate in what has become one of the world’s largest open data competition.

This year's Australian and New Zealand's competition will be held virtually and will feature the following themes:

• Resilience and Recovery of our Communities
• Beyond COVID-19: New Ways to Work & Play
• Inclusive and Accessible
• Health & Wellbeing
• Open Science
• Citizen Science
• Emergency Management
• Australian Bushfires

The ARDC has become a National Agency Sponsor this year to support the GovHack event.

Participate

GovHack is an international competition for people of all abilities who seek to make life better through open data.  Across one weekend, thousands come together to form teams, agree projects, and participate in what has become one of the world’s largest open data competition.

This year's Australian and New Zealand's competition will be held virtually and will feature the following themes:

• Resilience and Recovery of our Communities
• Beyond COVID-19: New Ways to Work & Play
• Inclusive and Accessible
• Health & Wellbeing
• Open Science
• Citizen Science
• Emergency Management
• Australian Bushfires

The ARDC has become a National Agency Sponsor this year to support the GovHack event.

Participate

ARDC Meeting Room 1 is inviting you to a scheduled Zoom meeting.

Time: Aug 27, 2020 12:00 PM Canberra, Melbourne, Sydney

Join from a PC, Mac, iPad, iPhone or Android device:

Please click this URL to start or join. https://monash.zoom.us/j/95301815733?pwd=VzhRdFBkQjBJWjFLY2pPZWtYM0JRUT09

Or, go to https://monash.zoom.us/join and enter meeting ID: 953 0181 5733 and password: 505282

Ensure your device has a dedicated microphone and webcam.

**Please do not share these details with those not on the participant list**

Join from a dial-in phone:

Dial: +61 3 990 59666 [+61 3 9905 ZOOM] or +61 2 8015 2088

Meeting ID: 953 0181 5733

International numbers available: https://monash.zoom.us/u/abDU2U954

Join from a Video capable room system(H.323/SIP):

Dial:

61262227588 (From within Monash only)

or:

103.122.166.55 (IP) or

zmau.us (Backup)

Meeting ID: 953 0181 5733

Password: 505282

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Use of Zoom is subject to Monash University’s IT <a href="https://www.monash.edu/__data/assets/pdf_file/0009/1092699/Information-Technology-Acceptable-Use-Policy.pdf">Acceptable Use Policy</a>.

For information relating to the handling of your personal information please refer to Monash University’s <a href="https://www.monash.edu/__data/assets/pdf_file/0003/790086/Privacy.pdf">Data Protection and Privacy Procedure</a>.

If you have any questions about how Monash University is collecting and handling your personal information, please contact our Data Protection and Privacy Office at dataprotectionofficer@monash.edu.

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