10
Dec

Navigating Linked Data Access in a Changing State and National Landscape

An interactive workshop providing researchers with a clear understanding of how to access the data needed for research that informs government policy and programs
View of Australia from space with golden lines linking various locations in the coutry and heading overseas

About the Event

Co-hosted by the Population Health Research Network (PHRN) and the ARDC, the 2024 installment of Monash Research Data Linkage Working Group’s (M-Link) annual end-of-yeat event will be an interactive workshop where you can get the most up to date information about accessing government held-data for research purposes.

During the workshop, you will hear about recent developments in the data linkage landscape from leading experts in the data linkage field representing key state and national organisations. This will be followed by a panel discussion. The event will provide researchers with a clear understanding of how to access the data needed for impactful research that delivers a positive difference for people and the planet, including informing government policy and programs. We will bring together key players, such as data custodians, national infrastructure providers, data integrators and regulators to discuss and clarify their roles, how they intersect, and the level of coordination within the Australian landscape.

Speakers

We will be hosting experts from PHRN, ARDC, the Office of the National Data Commissioner (ONDC) and government data custodians. The workshop will be chaired by Associate Professor Nadine Andrew, M-Link chair, Monash University. Panel members include:

  • Dr Felicity Flack, Senior Manager, Strategy and Services, PHRN
  • Dr Adrian Burton, Deputy CEO and Director, People Research Data Commons, ARDC
  • Sharon Williams, Manager, Centre for Victorian Data Linkage
  • Dr Andrew Taylor, National Data Commissioner, Assistant Secretary, Strategy and Delivery, ONDC
  • Natalie Cooper, Head, Data Integration Strategy Unit, AIHW.

Who Should Attend

Anyone interested in health and medical data linkage is welcome, including but not limited to:

  • higher-degree researchers (HDRs) or PhD candidates
  • early- and mid-career researchers (EMCRs)
  • senior researchers
  • infrastructure providers (including research facilities)
  • government agencies or data custodians providing data for research
  • human research ethics commitee (HREC) members
  • digital skills trainers
  • data custodians and/or data managers.

What You’ll Gain

You’ll gain an increased understanding of:

  • the current transforming landscape and strategy for accessing sensitive linked data from the perspective of lead state and national organisations
  • how recent changes to the sensitive data landscape have impacted on data governance, costs, secure research environments and timeliness of access
  • the long-term vision for the sensitive data landscape and data linkage in Australia and how this will be operationalised
  • how data custodians and infrastructure providers will engage with researchers to maximise the use of these new data assets given the ever-decreasing pool of research funding available
  • how host institutions (e.g. universities) can support these initiatives and embed them within their operational workflows and context.

Format and Recording

This is an in-person event at Monash University in Clayton, Victoria.

If you are not located in Melbourne and therefore cannot attend in person, please contact us to see if other arrangements may be possible.

We may take images at this event. If you wish to opt out, we will provide opportunities for you to notify us at the event.

About the Hosts and Further Resources

Monash Research Data Linkage Working Group (M-Link)

M-Link is Monash University’s data linkage community of practice. Its purpose is to upskill researchers and to share experience and knowledge in data linkage. It also advocates for data access for researchers and provide advice and recommendations for best practice, including navigating application processes, study design, data harmonisation, data security, management and analysis of linked datasets.

Population Health Research Network (PHRN)

The Population Health Research Network (PHRN) is one of Australia’s premier national research infrastructures, advancing innovation through the secure linkage, management and use of high-quality health and human services data. By partnering with researchers, government, industry and the community, PHRN equips Australian researchers with a competitive edge to conduct transformative, data-driven research. Hosted by The University of Western Australia, PHRN plays a critical role in driving health and social research excellence nationwide.

Explore PHRIN’s:

Australian Research Data Commons (ARDC)

The ARDC is Australia’s leading facility for research data infrastructure. We facilitate access to research data sets and tools from academia, industry and government for all Australian researchers.

As part of our strategy, we’ve initiated the People Research Data Commons (People RDC) to deliver national-scale data infrastructure for health research and translation. Researchers, innovators and policymakers seek to improve health outcomes for society, and yet the data and digital platforms they need span multiple layers of government, health service operations, health research studies, institutes, facilities and the private sector. A long-term program supported by the Australian Government, the People RDC initiative develops, operates and coordinates national-scale capabilities to support digital health research and translation. Our activities include the Health Studies Australian National Data Asset (HeSANDA), a national program that makes health and medical research data easier to find through the Health Data Asutralia catalogue.

Learn more and register your interest in our People Research Data Commons.

Do you have questions about this event? Contact us.

Please note that this event may be recorded and published by the ARDC. This may include your contributions during the session. Attendees are expected to comply with the Code of Conduct for Monash University and the Code of Conduct for ARDC Activities during this event. The ARDC respects the privacy of individuals. Information collected is in accordance with the ARDC Privacy Policy.

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