HeSANDA for Health Cohort Studies: Co-Design Workshops

About the Event

The Health Studies Australian National Data Asset (HeSANDA) program is building national infrastructure to allow researchers to share and access data from health studies, including clinical trials, cohort studies and other data valuable for research. HeSANDA is a foundational component of the ARDC’s health infrastructure portfolio – the People Research Data Commons, which is addressing Australia’s core digital health data challenges – and aims to make data from health studies discoverable to the broader research community.

Based on previous workshops with the Australian health cohort research community, ARDC now seeks to:

1. develop a national platform to support discovery of Australian health cohort studies and their data assets
2. develop a national community of practice to support Australian health cohort study data practices and culture
3. develop community-agreed national metadata standards for health cohort studies
4. uplift the consistency of data policies and practices across health cohort studies.

The new projects will build upon the highly successful model established with the clinical trials community, which created a partnership of over 70 research organisations, and which led to the creation of the Health Data Australia platform and a range of other resources to support the national research community.

A series of workshops will be held to co-design the scope of the new projects and identify potential project partners:

We encourage participants to attend all 3 workshops. If you are interested in being a project partner but are unable to attend the workshops, please contact us.

Who Should Attend

People working in any of the following areas should attend the workshops:

• health cohort research
• data management
• data infrastructure / IT.

What You’ll Gain

Participants will be able to:

• provide guidance on the scope of the ARDC’s new health cohort studies projects.
• register their interest in being project partners.

Recording

This session will be recorded.

Learn More

For more information, please refer to the program guidelines for HeSANDA for health cohort studies.

About the ARDC People Research Data Commons

The ARDC People Research Data Commons (People RDC) is delivering national-scale data infrastructure for health research and translation. It is a long-term program supported by the Australian Government.

Researchers, innovators and policymakers seek to improve health outcomes for society, and yet the data and digital platforms they need span multiple layers of government, health service operations, health research studies, institutes, facilities and the private sector. The People RDC initiative develops, operates and coordinates national-scale capabilities to support digital health research and translation.

Learn more and register your interest in the People RDC.

Do you have questions about this event? Contact us.